MACI FONTENOT is an amazing 8-year-old girl who is making a positive difference in the world.


Maci was diagnosed with an optical glioma at the age of 4; a tumor growing through her left optic nerve had slowly taken her vision in her left eye.


Today, after surgery and chemotherapy, the tumor is gone—and Maci is determined to make good things come from something that didn’t seem so good—to make a difference.


This book tells her story. 


visit MaciFest facebook page or on Instagram

Purchase your copy today.

You Can't Take My Vision

by Nikki and Maci Fontenot

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Maci Fontenot and her mom, Nikki, share Maci's story to make a difference in the lives of others, to remind us that we don’t have to be perfect to be amazing, that our differences make us unique—and unique is beautiful and powerful. 


Maci is also on a journey to raise awareness to find a cure for the blind to see again. She is partnering with the Texas Children’s Hospital Optical Glioma Research team and donating proceeds from this book to research. (Her goal is to visit all 50 states to market her book.)


Since she now wears glasses, Maci also wants to start her own glasses design company to make fun, special glasses for all ages, and to give glasses to those who can’t afford them.


After her surgery, Maci lived her dream of meeting the Jonas Brothers, thanks to the Make-A-Wish Foundation. Now, she raises thousands of dollars each year to send more children with terminal or life-threatening illnesses on the trip of a lifetime. How? She’s created a festival fundraiser called MaciFest in her hometown, Lake Charles, Louisiana, with amazing success. 

Today Maci is part of the solution, and that keeps purpose in her heart.  

Live in Southwest Louisiana? Purchase your copy of “You Can't Take My Vision” online or at one of these local businesses.

  • The O'Carroll Group, 300 E. McNeese St., Suite 2B, Lake Charles
  • Accessory Zone, 2910 Ryan St., Lake Charles
  • Dr. Harry Castle, DDS. 1616 W. McNeese St., Lake Charles
  • Gordon's Drug Store, 2716 Lake St., Lake Charles
  • Christian Book Center, 329-A W. Prien Lake Rd., Lake Charles
  • MSU Book Store, Ryan Street, Lake Charles
  • TeCi's Ladies Apparel, 3125 Ernest St., Lake Charles
The Fontenots join Al Roker at a taping of NBC's "Today" Show.
The Fontenots join Al Roker at a taping of NBC's "Today" Show.

MaciFest Youtube Channel coming soon so stay tuned!